Unexpected.

We are at full benefit and maximum dose on Wesley's methotrexate. The Rheumy in Colorado requested an exchange of pictures of his knees and hands from all angles the other day. I sent them and a few hours later, I got a call back from the nurse saying that he was displeased on the way his joints looked and the amount of swelling left. Wesley has been on a full vial of mtx, high dose steroids, Mobic, Leucovorin and Folic Acid for a few months now and it worked great for about 6 weeks, but then we noticed swelling coming back. To make a long story short, we are now waiting on insurance's Pre-approval to add in Enbrel injections as well. Our first dose will be on Saturday. This week, he will actually have 4 needles put into his body and he's not thrilled about it at all. It really breaks my heart. I was folding laundry on Sunday and we were discussing Christmas and Wesley was talking about his list. He said "Mom, please tell Santa that if he can just get me a cure for arthritis I won't ask for the other toys in my list, that's all I want b/c I'm tired of pain and needles." I felt my heart sink and my eyes immediately tear up. I told him that I sure wish that I could make that ONE Christmas wish happen for him and we'll just remain strong and have faith until one day I can make that come true.    :0(